Dystonia Around the World Challenge

Join us in virtually travelling 25,000 miles from Dystonia UK’s HQ around the world and back, and raising £25,000 to help raise global awareness of the condition affecting 100,000 people in the UK alone each year.

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Raised so far


Our goal


Miles logged


Miles goal: 25,000

1. Join in

Register online, as an individual or a team, and set up your fundraising page today.

2. Track Your Progress

Track your miles and/or minutes online and together we can power our #DystoniaAroundTheWorld virtual trip.

3. Fundraise

Share your fundraising page, your challenge and your reasons to increase global awareness of dystonia.

Join us in flying the flag for dystonia communities around the world

100,000 people in the UK, and many more worldwide, are affected by dystonia yet the condition remains largely unknown to the general public. That’s why this summer and through to the end of September, we’re challenging everyone to take on 100 miles (or 1,000 minutes of activity) in support of the dystonia community around the world while raising global awareness of the condition.

We are walking and cycling, painting and drawing, reading and writing, swimming and hooping, dancing and singing, cooking and baking, gardening and growing, creating and crafting. We are asking everyone to get involved and together, we will take dystonia awareness 25,000 miles around the world.

Join us by signing up now to get started on your challenge!

  • NIGE GRAY just donated £21
  • Karl A B just donated £10.50
  • Steven Walker just donated £10
  • James Hilsum just donated £25
  • Anon just donated £20
  • Alison Thompson just donated £10.50
  • Frances Rae just donated £15.75
  • Steven and Chris just donated £50
  • Danny just donated £27.30
  • Gemma MacKinnon just donated £26.25
  • James Mackinnon just donated £52.50
  • Maureen Macleod just donated £50
  • Flora Robertson just donated £30
  • Rod MacPhee just donated £52.50
  • Louise Mcalinden just donated £10.50
  • Bill Gallacher just donated £20
  • Donna (mcrury) Sheehan just donated £15.75
  • Margaret Gray just donated £10.50
  • Jennie just donated £10
  • Una Smith just donated £10.50

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What is the Dystonia Around the World Challenge?

It’s a virtual challenge where we all complete 100 miles (or 1,000 minutes) of activity between now and 30th September 2020 to collectively cover the ‘round the world and back’ distance from Dystonia UK’s HQ and raise global awareness of the dystonia condition. Throughout the challenge you can complete your miles on foot or on wheels, in the pool or on the stairs and get your minutes in from baking, crafting or many other activities as long as you record your progress on your online fundraising page and use your challenge to raise awareness of dystonia.

What type of challenge can I do?

We want to make sure everyone of all abilities and interests can get involved in #DystoniaAroundTheWorld so we encourage you to be as creative as possible. You can walk, run, cycle, swim, climb stairs, do sit-ups, paint, hold cooking classes, do a danceathon, write or more. As long as what you do allows you to achieve your miles or minutes target - the world is your oyster! If you’re struggling to come up with the right challenge, please do get in touch with fundraising@dystonia.org.uk for some ideas and inspiration or to request a fundraising pack. We’d love to help!

How much should I fundraise?

We’d encourage you to raise £250 or more to reach the overall target of £25,000 for the campaign. There is plenty of time and a lot of tips available on our resources page to help you in your fundraising journey. All the money you raise will go towards supporting people living with dystonia in the UK and raising worldwide awareness of the condition.

Watch our short video to find out more about the challenge from the team at Dystonia UK

Join our #DystoniaAroundTheWorld community
and raise awareness with every mile