My Activity Tracking
366
mi
My target 200 mi
Thanks for visiting my profile. This year, I am taking on Dystonia UK's epic #DystoniaAroundTheWorld challenge to raise awareness and funds for my charity!
Thanks for visiting my profile. This year, I am taking on Dystonia UK's epic #DystoniaAroundTheWorld challenge to raise awareness and funds for my charity!
I will be taking part in various activities to build up as many miles as I can to power the virtual trip from Dystonia UK's HQ in London around the world and back.
Dystonia is a neurological movement disorder that is estimated to affect at least 100,000 people in the UK. It presents with uncontrollable and sometimes painful muscle spasms triggered by incorrect signals from the brain. It is the 3rd most common movement disorder behind Parkinson’s and essential tremor yet many have never heard of it.
Dystonia UK is the only UK national charity dedicated to helping people affected by dystonia.
Help me put dystonia on the world map and change the lives of people who often feel alone and forgotten by taking on the #DystoniaAroundTheWorld challenge yourself or donating to my fundraising page.
Thank you so much for your support!
My Achievements

Added a profile picture

Raised £250

Increased goal

Had 10 members join the team

Created a page

Received donations from 10 supporters
My Updates

Nearly there
Wednesday 16th Sep
Twitchy hand
Thursday 27th Aug An annoying symptom of focal dystonia, is twitching. Twitching of my right hand and fingers and wrist, the Botox that I receive does help relieve some of that; however Some days the twitch becomes more apparent, obvious and annoying. Usually the twitch/jerk is more constant When the Botox begins to wear off; I am due Botox again on the 23rd of September. My hand is twitching more , I notice this more if I am sat still, for example watching the television, trying to get to sleep or in a meeting at work. The twitching is annoying and can bring on frustration as I feel as if I cannot rest my arm and wrist.
Plastic food bags
Thursday 20th Aug Just taken @ 6 minutes to try and open a plastic freezer food bag.
Just a little update
Tuesday 18th Aug Exceeded my monies raised target 😜😀😀
Gardening
Sunday 9th Aug Today was gardening day , something I enjoy lots but again I have limitations .
Today
Friday 7th Aug Difficult day today
Thank you
Thursday 6th Aug Thank you to all who donated so far
Focal dystonia ..... me
Sunday 2nd Aug Ok so , I was diagnosed with focal dystonia of the right hand approx 18 months ago......never heard of it...... and neither had a lot of people.Thank you to my Sponsors

£65
Mam & Dad

£52.50
Judith Green
Love from us both

£36
Val & Michael Barnett
Well done, love Mam & Dad xx

£30
Andrew Green
You’re doing great, you’ll be targeting 300 miles at this rate 👍

£26.25
Paul
Keep going, you'll reach that bottle of gin soon. Seriously though, good luck it's a worthy cause.

£26.25
Richard Tosh
Hi Vic, I am really impressed with how you are dealing with this challenge, and the fact you are as positive and cheeky as ever! R x

£25
Green
Amazing job sister-in-law. Very proud x

£25
Anonymous

£21
Ann Kendall
You go girl! xx

£21
Bridget Balfour
Good luck Victoria I know how challenging this condition has been for you so well done with raising awareness and funding 💕

£21
'auntie' Anne
You can do it Vic - you have coped so well with all challenges so far. Thank you for being like a daughter' and good friend!

£21
Peter And Julie Robinson
Super Cause Vic - wishing you lots of luck Love The Robbos x

£21
Suzanne Simpson
Well done Victoria! You are an inspiration 🥰 xxx

£21
Edna Cairns

£21
Jackie And Bob
From Jackie and Bob Woodall with love and huge congratulations on your achievement.

£20
Kerry Fernandes
Lots of luck, what a great thing you're doing, so proud of you, lots of love Kerry and Lindemann xxx

£20
Anonymous

£20
Anonymous

£15.75
Brigiet Scurr
You are fabulous, courageous, strong and a great friend. You got this!

£15.75
Gail And Berkeley Henegan
Well done so far with your challenge, Victoria. Good luck with the remaining miles xx

£15.75
Joanne Thomas
Well done lovely lady!! Wishing you all the best always, lots of love Jo, Steve, Jenna and Isla xxxx

£15.75
Andy Braithwaite

£15
Veronica Low
Keep up the good work

£15
Chris Cobain

£15
Anonymous

£13.65
Stu

£10.50
Amy Livesey
You go lady!💪

£10.50
Annabel Livesey
Good luck Auntie Victoria. That's a very long bimble 😁

£10.50
Doublett

£10.50
Judy Butler
Good luck Vic xxx

£10.50
Jonathan Scurr
A worthy cause for a lovely lady. Smash the target Vic.

£10.50
Rachel Palmer
Good luck with your challenge! X

£10.50
Kelsie Cook
Good luck xx

£10.50
Jean Cusic
Good luck, stay strong. x

£10.50
Elizabeth Parnaby

£10.50
Steve Cummings
Go for it Vic!!

£10.50
Helen Self
Good luck Victoria x

£10
Susan Hamilton
Good luck

£10
Emma Coyle
Well done x

£5.25
Toni Cummins
Raising a glass to you for doing this and raising awareness at the same time. X

£5.25
Vic C
All the very best of luck Vic xxx

£5.25
Mr Pm Haustead
Well done Vic. Keep up the good work.
We are so very proud of you Lots of love Mam & Dad xxx