Mariah Kelley

Thanks for visiting my profile. This year, I am taking on Dystonia UK's epic #DystoniaAroundTheWorld challenge to raise awareness and funds for my charity!

Thanks for visiting my profile. This year, I am taking on Dystonia UK's epic #DystoniaAroundTheWorld challenge to raise awareness and funds for my charity!

I will be taking part in various activities to build up as many miles as I can to power the virtual trip from Dystonia UK's HQ in London around the world and back.

Dystonia is a neurological movement disorder that is estimated to affect at least 100,000 people in the UK. It presents with uncontrollable and sometimes painful muscle spasms triggered by incorrect signals from the brain. It is the 3rd most common movement disorder behind Parkinson’s and essential tremor yet many have never heard of it.

Dystonia UK is the only UK national charity dedicated to helping people affected by dystonia.

Help me put dystonia on the world map and change the lives of people who often feel alone and forgotten by taking on the #DystoniaAroundTheWorld challenge yourself or donating to my fundraising page.

Thank you so much for your support!

My Achievements

Added a profile picture

Raised £250

Increased goal

Had 10 members join the team

Created a page

Received donations from 10 supporters

My Updates

Dystonia journey

Saturday 1st Aug
My name is Mariah and I have dystonia. It's a neurological disorder where my nerves fire always on the right side of my body unless I am sleeping. This affects me in different ways. I can do most things as someone unaffected by dystonia, I just have to take precautions or extra supplies. For example, I rowed for my school during my Master's, but I couldn't go out for practice in the rain during the winter because one of my  triggers is sitting in cold wet clothes. When I did, I would have to be diligent about PT, pain medication, sleep and heat therapy for at least a week. I am in different ranges of pain almost every day. Depression, anxiety and self-isolation are also common symptoms of people with dystonia, although muscle spasms is what I struggle with more than anything. Structuring my life around my symptoms helps alot with managing daily pain. Life has changed a lot for me since being diagnosed. Many people don't know what it is, including some doctors I have spoken to. September is dystonia awareness month and I am hoping to help raise some awareness and money for Dystonia UK. Thanks for reading this.  

Join our #DystoniaAroundTheWorld community
and raise awareness with every mile