Your questions answered

We hope to have answered all your questions below but if you need us, please get in touch with fundraising@dystonia.org.uk and our team will be very happy to help!

We are with you every mile and minute of the way to make your #DystoniaAroundTheWorld challenge a success!

Contact us

The challenge

Fundraising

Tracking your progress

Where your money goes

The challenge

What is the Dystonia Around the World Challlenge?

It’s a virtual challenge where we all complete 100 miles (or 1,000 minutes) of activity between now and 30th September 2020 to collectively cover the ‘round the world and back’ distance from Dystonia UK’s HQ and raise global awareness of the dystonia condition.

Throughout the challenge you can complete your miles on foot or on wheels, in the pool or on the stairs and get your minutes in from baking, crafting or many other activities as long as you record your progress on your online fundraising page and use your challenge to raise awareness of dystonia.

Where will the event take place?

This is a virtual challenge so you can choose to log your miles or minutes from anywhere that is safe and comfortable for you while following government guidelines around COVID-19.

If you’re exercising outdoors, please be sure to keep 2 meters away from others and review the full guidance on the government’s website here as the plans for dealing with the pandemic are updated regularly.

When will the event take place?

The challenge will be ongoing throughout the summer and ending on 30th September as part of our Dystonia Awareness Month celebrations.

What type of challenge can I do?

We want to make sure everyone of all abilities and interests can get involved in #DystoniaAroundTheWorld so we encourage you to be as creative as possible. You can walk, run, cycle, swim, climb stairs, do sit-ups, paint, hold cooking classes, do a danceathon, write or more. As long as what you do allows you to achieve your miles or minutes target - the world is your oyster!

If you’re struggling to come up with the right challenge, please do get in touch with fundraising@dystonia.org.uk for some ideas and inspiration or to request a fundraising pack. We’d love to help!

Can I do this with friends and family?

Absolutely, the more the merrier!

Simply sign up as a team (remember your team name!), and you will be able to see all the miles and funds your team has raised added to the overall total. As it's a virtual challenge, you don't even need to live in the same house or do your miles at the same time. Just remember to link your team together when you sign up and you'll have a goal you can all work towards together or even make it a friendly competition.

I am not in the UK, can I still take part?

Absolutely! Our main goal is to raise global awareness and connect the dystonia community everywhere. It is dystonia around the world, so you can join us from anywhere to power the trip.

Fundraising

How much should I fundraise?

We’d encourage you to raise £250 or more to reach the overall target of £25,000 for the campaign. There is plenty of time and a lot of tips available on our resources page to help you in your fundraising journey. All the money you raise will go towards supporting people living with dystonia in the UK and raising worldwide awareness of the condition.

What can I do to fundraise?

Start by sharing your page with friends and family via text, email or social media to let them know that you’re taking part in the #DystoniaAroundTheWorld challenge and how much their donation would mean to you. We have also put together ideas and inspiration on our resources page to help you in your fundraising journey.

How can I request materials?

To request a vest or t-shirt and a copy of our digital fundraising pack, please email fundraising@dystonia.org.uk so that a member of our fundraising team can send those out to you.

How can I pay in my funds?

All the money you raise on your online fundraising page is transferred directly to us through the Funraisin platform.

If you also have some offline fundraising that you’d like to pay in, you can do so via cheque made payable to Dystonia UK sent to our address Dystonia UK, 3rd Floor, 89 Albert Embankment, London, SE1 1TP.

I can't do any fundraising but want to donate, how can I do so?

Thank you so much for wanting to support us with a donation. You can make a donation directly to the #DystoniaAroundTheWorld campaign by using the donate button at the top of this page.

I'm taking part as a team, how much do I need to raise?

Every mile and every donation helps support people living with dystonia in the UK, so we’re grateful for however much you raise. You could ask each member of your team to raise £250 or set a collective fundraising target. Be bold and aim high, we know you can do it and we’re here to support you throughout the challenge.

Tracking your progress

How will my miles be counted?

If you are doing a sporting activity, which can be tracked in miles such as walking, cycling or swimming then all you have to do is log your miles on your fundraising page. You can use a fitness tracker such as a Fitbit or Apple Watch. You can also use free apps like Strava, Google Fit or many more, which you can download onto your smartphone. You can either synchronise the app with your fundraising page to automatically update your total miles or enter them in manually onto your page.

How can I track my minutes of activity?

If you are doing a non-sporting activity or an activity which cannot be tracked in miles such as painting, dancing or cooking then you will need to track the time you have taken on your activity in minutes. You will then need to manually convert that into miles when logging progress on your fundraising page using our 10 minutes of activity is equivalent to 1 mile metric.

For example, if you have done a 60 minute danceathon, you’d record that as 6 miles on your fundraising page. And if you have done 15 minutes of painting, you'd record that as 1.5 miles on your fundraising page.

Can I complete my challenge using a mixture of miles and minutes?

You definitely can! We want the #DystoniaAroundTheWorld challenge to be as inclusive and accessible as possible so you can complete your 100 miles, or 1,000 minutes, in a variety of ways to best suit you.

Just remember that when logging your progress on your fundraising page, you need to record it in miles - where you have tracked the distance in miles covered during your activity enter that number in directly and where you have tracked the time in minutes taken by your activity, divide the number of minutes by 10 to get your miles equivalent (10 minutes of activity is equivalent to 1 mile) and enter that number to update your fundraising page.

Where your money goes

What is my fundraising contributing towards?

All the money you raise will go towards supporting people living with dystonia in the UK and raising worldwide awareness of the condition. Dystonia UK is the only UK national charity dedicated to helping people affected by dystonia. You can find out more about our work on our website

What can you do with £25?

Much of our work is focused on amplifying the voice of people with dystonia with policy making and research organisations. £25 could go towards the cost of live streaming a specialist one-hour webinar with a medical professional for the dystonia community, to help answer questions and provide updates on treatment options. You can find out more about our work on our website.

Why are the individual fundraising targets suggested as £250?

We want to encourage everyone to aim high when setting their individual fundraising targets because we know you can do it! £250 could go towards producing one of the podcasts in the Reach Out, Reach All series, to help combat the social isolation that can be a large part of living with dystonia. The dystonia community, even within the UK alone, is geographically diverse so we wanted to facilitate having people with dystonia share their stories and help each other navigate life’s milestones. You can find out more about our work on our website.

What sort of difference can I make?

Whether you are fundraising, sharing the campaign or making a donation to someone who is fundraising as part of Dystonia Around The World, every mile, every minute and every donation helps support people living with dystonia in the UK. We are incredibly grateful for your support! With everyone’s help, we can reach our overall goal of £25,000 and raise global awareness of dystonia. You can find out more about our work on our website.

Join our #DystoniaAroundTheWorld community
and raise awareness with every mile